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I am joining the fight against Neurofibromatosis by participating in the NF Hero Challenge this August!
Neurofibromatosis (NF) is a cancer predisposition disorder that causes tumours to grow on the nervous system, including the brain and spine. It is progressive, unpredictable and there is no cure.
Living with NF is like living with a ticking time bomb. Tumours can grow anywhere, at any time. Children and adults with this disorder can lose their vision, develop untreatable brain and spinal tumours and experience deafness, bone abnormalities, cancer, learning difficulties and disfigurement. Despite the uncertainty and the pain, people with NF are brave, resilient and inspirational. They are NF heroes!
Tumours should never be a person's normal and I am proud to be fighting for a cure.
The Children's Tumour Foundation (CTF) is the leading charity in Australia supporting children and their families with NF. NF affects as many as 1 in 2,500 births, making it more common than Cystic Fibrosis, Huntington's Disease and Muscular Dystrophy, yet sadly, awareness is lacking.
Government funding accounts for less than 2% of income generated by the Children's Tumour Foundation, which equates to less than $2 in funding, per person affected in Australia. THEY NEED OUR HELP!
I have a goal to raise $1000 to support the Children's Tumour Foundation's investment into research, specialist clinics and vital support services.
Please help me reach my goal and complete my challenge by making a tax deductible donation. With our powers combined, I believe we can #conquerNF.
Be a hero today!
133 days ago
You are a true inspiration!!!
140 days ago
Captain Carys you are a star ⭐️
144 days ago
Good luck Carys, I hope you enjoy the bike ride!
147 days ago
How inspirational! Good luck for your bike ride Carys.
159 days ago
Congratulations Carys on your amazing bike ride.
Captain Carys you are such an inspiration! All the best with your ride!
160 days ago
162 days ago
Well done Carys for bringing awareness. Thinking of you and your family. Love Asia, Mark, Isaac, Le
Well done Dena!
Good luck Dena!
Well done Carys. You're a true Hero. Congratulations. Helena and Peter 😊 xx
Thanks for your story. Keep on keeping on and I hope that things stay well with you and your family.
163 days ago
Good luck Dena!
Well done Dena on raising the awareness of the issue and to raise funds to support others.
Supporting team Carys! You're a true inspiration to all of us :)
164 days ago
Congratulations Carys - we think you are amazing! Love from Holly & Jake xxx
165 days ago
Well done Carys. What an amazing thing to do love Carys & Charlie xx
Good luck Carys
You are amazing!
Enjoy the ride ^.^ !
We support you all the way our gorgeous Carys! Lots of love your cousins, Aunty & Uncle xxx
A great cause...best of luck with the challenge!!
Sue, Tim, Brynie, Peter & Marc
166 days ago
167 days ago
All the best Dena and be strong and confident!
Good luck Carys !
Great work Dena! Very Inspirational, all the very best!
Great cause and inspirational story. Best of luck with the ride Carys!
168 days ago
Well done Captain Carys. Good luck and have fun riding around the beautiful Narrabeen lake. xx
To Carys....well done and enjoy the day. Love Madeline and Mitchell
All the best Carys! You're so brave! :)
Good luck Carys, such a wonderful brave & inspirational girl
From Luca and Family
169 days ago
Go Carys, Im sure you will beat your Dad hands down.
171 days ago
Carys, what an inspirational story, you really are a hero! Good luck with the challenge.
Well done Carys! This is a great way to raise awareness about this genetic condition.
Best of luck with the ride!
Well done Carys, we are all so proud of you. Best of luck on your day, love Aunty Julia and Family x
Hi Carys we think you have done an amazing thing. Diane and Salvatore (friends of your grandma)
172 days ago
173 days ago
Keep peddling Carys! Good luck, Besim, Marina and Ines x
Well done Carys - what a wonderful thing to do. Lots of love from Dilys & John xxx
Cheering you on from Canada 🇨🇦!
174 days ago
Doing a great job as a NF Hero Carys! Enjoy the bike ride!
175 days ago
What an inspirational story, well done Carys and Good Luck with the challenge!
Inspirational story Carys! You are very brave and smart. Shoot for the stars!!!
lots of love - and best of luck on the ride!
176 days ago
Amazing Job Carys! Good luck
You are amazing and definitely making a difference! xxx
What a wonderful brave person you are! Best wishes.
Such an amazing job Carys on raising awareness, enjoy the bike ride! From the Isbells
Best of luck with your challenge Captain Carys! What an amazing girl you are!
All the best and enjoy the ride!
Good luck Carys - amazing job on your video too :)
Good Luck Carys
Go Carys! You are an inspiration!
Good luck Carys!
Well done Dena! See if you can get your dad on a bike sometime soon!
Well done Captain Carys!
How inspirational Carys, hope you enjoy the ride.
Go Carys! Keep up that fighting attitude!
Well done Carys
Great work Carys. Wish you all the best!
Good luck Carys. You are inspirational.
Carys, you are an inspiration and incredibly brave! All the best! Pooja, Varun, Tamira and Jasmine.
Best of luck in your endeavours Captain Carys!
177 days ago
Carys you are a legend I wish you the very best with the challenge and your personal journey.
Well done Carys for sharing your story to raise awareness and also for fundraising!
I hope the NF Hero Challenge is very successful Carys and that you enjoy the ride.
Great work Cerys
Well done Carys for being an inspiration for all. Good luck for the ride
Carys, you are so brave and an inspiration to everyone! Best of luck, Madina, Wali, Aiden & Zac x
What a brave girl! Good luck with the challenge.
All the best Carys.
Good luck and so proud of you!
Great inspiration Carys, keep strong and I am sure you will smash the 25km bike ride. Go Girl
Good luck and stay strong. Charlotte Young and family.
180 days ago
Good luck Carys! Love Olivia xx
183 days ago
185 days ago
Good Luck Carys and team!!!!
Good Luck Carys! From Aya x
Carys - you are just adorable and so courageous. We are delighted to donate to such a worthy cause.
186 days ago
Good luck on your ride
187 days ago
Go Captain Carys!
Love uncle rich & aunty Louise
188 days ago
Great Work! Love Dom & Nic
190 days ago
From The Berrys in England “Good luck Carys, what an amazing effort - hope it all goes well xx”
Great initiative, Carys. You are an inspiration with your leadership. Aunty Halina & Uncle David xx
191 days ago
Amazing Carys. Well done xxx
So proud of you Carys! xx
192 days ago
Such an inspiration Carys.
We salute you Captain Carys & are very proud of every thing you do.
Lots of hugs Granny & Granddad
Good luck xx
Go Carys.. love & hugs from Tamar 🤗
Awesome effort Carys. From Marilla
Keep up the great work Carys!!
So Brave Carys
193 days ago
Good Luck Carys! Lots of love and cheering you on - Bec and Annika Harding x
What a brave and beautiful girl you are! Great work :-) from Team Razvi
Love and hugs
Go Carys! Proud of you! Auntie Barbs, Uncle Steve, Mattie and Sean.
Good luck Carys! Elisa&Lucas xx
Good luck for your preparation and your big ride Carys!
Love Paul, Emily & Riley xo
Go Carys! From Tasman & family
Go Carys! 👊❤️
From your Granny in England “Good luck Carys, Granny is very proud of you xx”
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