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I am joining the fight against Neurofibromatosis by participating in the NF Hero Challenge this September!

Neurofibromatosis (NF) is a cancer predisposition disorder that causes tumours to grow on the nervous system, including the brain and spine. It is progressive, unpredictable and there is no cure.

Living with NF is like living with a ticking time bomb. Tumours can grow anywhere, at any time. Children and adults with this disorder can lose their vision, develop untreatable brain and spinal tumours and experience deafness, bone abnormalities, cancer, learning difficulties and disfigurement. Despite the uncertainty and the pain, people with NF are brave, resilient and inspirational. They are NF heroes!

Tumours should never be a person's normal and I am proud to be fighting for a cure.

The Children's Tumour Foundation (CTF) is the leading charity in Australia supporting children and their families with NF. NF1 affects as many as 1 in 2,500 births, making it more common than Cystic Fibrosis, Huntington's Disease and Muscular Dystrophy, yet sadly, awareness is lacking.

Government funding accounts for less than 2% of income generated by the Children's Tumour Foundation, which equates to less than $2 in funding, per person affected in Australia. THEY NEED OUR HELP!

I have a goal to raise $15000 to support the Children's Tumour Foundation's investment into research, specialist clinics and vital support services.

Please help me reach my goal and complete my challenge by making a tax deductible donation. With our powers combined, I believe we can #conquerNF.
Be a hero today!

My Updates

06 Jul 2019

And if I raise $10000 I will walk the last km blind folded with help from Libby because NF can also cause the development of cataracts, potentially compromising vision.

If I make it over $10000 we will add more challenges and continue to fight to ConquerNF

06 Jul 2019

If I raise $5000 I’ll grow a Mo. Why you may ask? After Libby’s first surgery she thought she was a monster and wouldn’t have any friends from the effects to her face. Me with a mo is not pretty and it’s the only why I can replicate it.

If I raise $7500 I will maintain a blade smooth shaved head. This is to replicate the effects of Chemo which some of the NF families we know are using to try and fight this disorder.

06 Jul 2019

If I raise $2500 I will do the walk with hearing protection in to replicate being deaf this is due to NF2 being characterized by the development of benign tumors, called vestibular schwannomas on the nerve that carries sound and balance information from the inner ear to the brain (the eighth cranial nerve). These tumors affect both ears, often leading to partial or complete hearing loss.

06 Jul 2019

Well it’s that time again
Time to put my body on the line to raise much needed funds to help research treatment or a cure for NF2.
What spine breaking thing am I going to do this time you may ask.

Well to start I’ll be carrying 40kg for the 1 - 40000 kids that have NF2
For every $500 raised I’ll walk a km.

Cameron has 103 supporters