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Roger will jump into the freezing Port Phillip Bay, in a yellow tutu to raise awareness for Neurofibromatosis.
For $10,000 His wife Hilda will join him.
Why because their Daughter Bianca is an Nf1 Hero!
I am joining the fight against Neurofibromatosis by participating in the NF Hero Challenge this August!
Neurofibromatosis (NF) is a cancer predisposition disorder that causes tumours to grow on the nervous system, including the brain and spine. It is progressive, unpredictable and there is no cure.
Living with NF is like living with a ticking time bomb. Tumours can grow anywhere, at any time. Children and adults with this disorder can lose their vision, develop untreatable brain and spinal tumours and experience deafness, bone abnormalities, cancer, learning difficulties and disfigurement. Despite the uncertainty and the pain, people with NF are brave, resilient and inspirational. They are NF heroes!
Tumours should never be a person's normal and I am proud to be fighting for a cure.
The Children's Tumour Foundation (CTF) is the leading charity in Australia supporting children and their families with NF. NF affects as many as 1 in 2,500 births, making it more common than Cystic Fibrosis, Huntington's Disease and Muscular Dystrophy, yet sadly, awareness is lacking.
Government funding accounts for less than 2% of income generated by the Children's Tumour Foundation, which equates to less than $2 in funding, per person affected in Australia. THEY NEED OUR HELP!
I have a goal to raise $10,000 to support the Children's Tumour Foundation's investment into research, specialist clinics and vital support services.
Please help me reach my goal and complete my challenge by making a tax deductible donation. With our powers combined, I believe we can #conquerNF.
Be a hero today!
02 Sep 2019
Thanks you to Biancas aunty Maey and her cousins Freddy Joey and Ronny for joining us with the jump.
Water temp was 9.7 as cold as it was I would do it again just to hear Bianca laugh as she pushed us in
22 Aug 2019
Come cheer us on, or if you're brave enough come have a dip to raise awareness for NF.
Where : Brighton Baths Health Club
When: Saturday 31st of August
19 Aug 2019
I have Rogers Tutu ready to go. Once we have the date and time for location locked in.
I'll post it here, you are all welcome to come along.
We will also try and go live on FB.
Well done Roger
131 days ago
Well done Roger and Family
141 days ago
Beautiful Bianca, you are amazing & so is your lovely family xxx
142 days ago
Children’s Tumour Foundation after Roger jumped into the sea in a yellow tutu this afternoon
144 days ago
Sending your beautiful Bianca and family all my love
God bless guys🙏🙏
145 days ago
Good luck for today! You all look great in yellow tutus!
Looking good cuz
❤❤ the bravest girl we know❤❤
A great cause..
Good luck tomorrow
This one is to see you in a Tutu Roger..
Good luck with the swim.
146 days ago
We pray they find a cure very soon.
Your strength is an inspiration B.
You are a champion B, we are so proud of you. Love you lots.
Your favourite cousins
Jess and Joe
Roger can't wait to see you swim....
Good luck Bianca
147 days ago
If the tutu doesn't fit. World Fitness will also donate a skipping rope. But your number 2 uncle.
Sweet Bianca, praying for ur good health,we’re amazed by your strength xx pete & Serena Baalbaki
148 days ago
All the best for the future. From Samia and the family
Roger, best wishes to Bianca and your family ... I think Hanna should also be brave and join you :-)
This donation is made by families of EBVJFC in lieu of gift for our football coach Pete McCormack.
Very inspirational Roger, Hope it’s not too cold bro!
Roger you are a legend...
I hope all goes well on Saturday
149 days ago
Your our Heroes, Bianca & Roger
All the Best,
Helen & Julian
150 days ago
With love from Rach & Matt - Brighton Baths Health Club. Look forward to seeing you in the water.
152 days ago
Best wishes today and always to your gorgeous girl
154 days ago
Bianca is always in our prayers. May God and St Charbel always protect her
155 days ago
157 days ago
Good luck guys :) - Charlie, Renee and the kiddies xx
158 days ago
I’d lend you my tutu cuz, but I don’t think it’d fit hehe. God bless your family 😘
159 days ago
Nice job Roger, wishing you and your family strength through this. 💗Hugs from Canada💗
Go Roger! What a great effort for beautiful Bianca xx
What a great barista, great parents and great kids. What an easy decision this was to donate.
Great cause guys and a top effort. Love from The Omer's!
B we are so proud you chose us 2 b Ur family. We love U v much, Ash, Lorraine & Hunter
160 days ago
Wishing for the best for Bianca always 💕
All the best Bianca!!
163 days ago
You are all an inspirational family. Keep up your strength and courage
LeeAnn & Lani
165 days ago
166 days ago
Bianca you are an inspiration to us all 💕💗
I hope one day Bianca we can all have the same courage and strength as you, we love you
You both are amazing parents for B ❤👍👍👍
Great cause. Good luck !
Lots of ❤
Hugs & Kisses 😘
167 days ago
Sending All Our Love
Thank you for sharing your story and inspiring those around you. Sending lots of love and thanks xx
Keep up the great work in helping raise awareness of NF.
168 days ago
An amazing, strong family - you deserve all the support x
Dennis, Antoinette & Elissa
All our love De and Jason
Good luck Roger!
Roger, legend bro. All the best. Cheers
169 days ago
A hero with the smile of an angel and a heart of gold.
You’re a champ young B! Xox
Well done Roger & Hilda.
You are a star Bianca....well done Roger & Hilda...such a beautiful family xxx
170 days ago
Well done Roger. Bianca you are a beautiful girl
B our little champ! Good luck Rog xx
171 days ago
God willing they find a cure soon.
Our love and prayers to you all, especially brave Bianca. Mariam, Bahman & Yasi xxxx
Let's all jump in together
172 days ago
Anything to see that beautiful smile on Bianca’s face seeing Mum and Dad jumping in cold water xxx
All the best wishes to Bianca and family.
With hope to find a cure.
Bianca is the best. Roger jumping in the ocean in a tutu, I can't wait to see this.
All the best with your efforts.
Good on you Roger, great cause well done, Bianca will be proud of you!
173 days ago
Go B you're a champion!
God bless you all! Bianca you are such a strong and beautiful girl! xxx
Sending prayers and blessings for Bianca🙏🙏💖
Anything to see B smile and be happy xx
Nice work Mate!
The yellow tutu is a nice tough Rogi.....love to you and your beautiful family...Aunty Lisa
Good luck Fodger!!
Proud of you Roger
We love you B. You are super brave and we are so proud of the beautiful girl you are!! Well done Rog
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