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Bianca our Hero

$17,165
raised of
$10,000 goal
Thanks to
95 supporters
3 / 5 Badges

Roger will jump into the freezing Port Phillip Bay, in a yellow tutu to raise awareness for Neurofibromatosis.
For $10,000 His wife Hilda will join him.
Why because their Daughter Bianca is an Nf1 Hero!

I am joining the fight against Neurofibromatosis by participating in the NF Hero Challenge this August!

Neurofibromatosis (NF) is a cancer predisposition disorder that causes tumours to grow on the nervous system, including the brain and spine. It is progressive, unpredictable and there is no cure.

Living with NF is like living with a ticking time bomb. Tumours can grow anywhere, at any time. Children and adults with this disorder can lose their vision, develop untreatable brain and spinal tumours and experience deafness, bone abnormalities, cancer, learning difficulties and disfigurement. Despite the uncertainty and the pain, people with NF are brave, resilient and inspirational. They are NF heroes!

Tumours should never be a person's normal and I am proud to be fighting for a cure.

The Children's Tumour Foundation (CTF) is the leading charity in Australia supporting children and their families with NF. NF affects as many as 1 in 2,500 births, making it more common than Cystic Fibrosis, Huntington's Disease and Muscular Dystrophy, yet sadly, awareness is lacking.

Government funding accounts for less than 2% of income generated by the Children's Tumour Foundation, which equates to less than $2 in funding, per person affected in Australia. THEY NEED OUR HELP!

I have a goal to raise $10,000 to support the Children's Tumour Foundation's investment into research, specialist clinics and vital support services.

Please help me reach my goal and complete my challenge by making a tax deductible donation. With our powers combined, I believe we can #conquerNF.
Be a hero today!

My Updates

02 Sep 2019

Thanks you to Biancas aunty Maey and her cousins Freddy Joey and Ronny for joining us with the jump.

02 Sep 2019

Water temp was 9.7 as cold as it was I would do it again just to hear Bianca laugh as she pushed us in

22 Aug 2019

Come cheer us on, or if you're brave enough come have a dip to raise awareness for NF.
Where : Brighton Baths Health Club
When: Saturday 31st of August
Time: 2pm

19 Aug 2019

I have Rogers Tutu ready to go. Once we have the date and time for location locked in.
I'll post it here, you are all welcome to come along.
We will also try and go live on FB.

Roger has 95 supporters

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