Dialog Box

Charlies Crew

raised of
$6,000 goal
Thanks to
84 supporters

I am joining the fight against Neurofibromatosis by participating in the NF Hero Challenge this August because our son Charlie has NF1

Neurofibromatosis (NF) is a cancer predisposition disorder that causes tumours to grow on the nervous system, including the brain and spine. It is progressive, unpredictable and there is no cure.

Charlie has a Optic Glioma (brain tumour) spots on the brain and spine, learning disability, cafe a lait spots, lisch nodules and the list goes on.

Living with NF is like living with a ticking time bomb. Tumours can grow anywhere, at any time. Children and adults with this disorder can lose their vision, develop untreatable brain and spinal tumours and experience deafness, bone abnormalities, cancer, learning difficulties and disfigurement. Despite the uncertainty and the pain, people with NF are brave, resilient and inspirational. They are NF heroes!

Tumours should never be a person's normal and I am proud to be fighting for a cure and fighting for Charlie.

The Children's Tumour Foundation (CTF) is the leading charity in Australia supporting children and their families with NF. NF affects as many as 1 in 2,500 births, making it more common than Cystic Fibrosis, Huntington's Disease and Muscular Dystrophy, yet sadly, awareness is lacking.

Government funding accounts for less than 2% of income generated by the Children's Tumour Foundation, which equates to less than $2 in funding, per person affected in Australia. THEY NEED OUR HELP!

I have a goal to raise $2000.00 to support the Children's Tumour Foundation's investment into research, specialist clinics, vital support services and medical trials that will help Charlie through this journey.

Please help me reach my goal by making a tax deductible donation. With our powers combined, I believe we can #conquerNF and find a cure so Charlie live his life like a normal teenager.

My Updates

26 Aug 2019

Yesterday we had out NF Hero Walk and had around 270 people attend. We are so overwhelmed by the support. Why would you live anywhere else???
THANK YOU from the bottom of our hearts. We are so very grateful very everyones contribution.

Charlies Crew has 84 supporters