NF is a rare genetic disorder that causes tumours to grow on nerves throughout the body. It is a cancer predisposition syndrome that affects 1 in 2,500 births in Australia. It is progressive, unpredictable and there is no cure.
NF causes tumours to develop on ANY nerve in or on the body at any time. These tumours can develop just underneath the skin’s surface and cause visible external growths, or they can grow deep within the body and affect major organs and the nervous system, including the brain and spine.
NF can lead to a range of complications including deafness, blindness, paralysis, physical deformities, bone abnormalities, an increased risk of cancer, learning disabilities and chronic pain. Unfortunately, effective treatment options are limited.
For more information about NF, please visit the ABOUT NF page or visit our main website. To meet some of the affected by NF near you, check out the NF Hero section of our site.