Dialog Box

NF Hero Challenge Ideas

WHAT IS THE NF HERO CHALLENGE ALL ABOUT?

Everyday, children and adults with NF fight a formidable foe. NF attacks their body from the inside out - without warning and without remorse. Our NF Heroes are the people who live their lives in the shadow of this disorder, but remain positive and strong despite the litany of specialist appointments, surgeries and potential for learning difficulties.

They show us what brave looks like. They show us that courage is earned, that the challenges we face shape who we are as people and that community has the power to not just lift our spirits, but help them to soar.

The NF Hero Challenge is both an excuse and an opportunity to take on something physically demanding, face a legitimate fear or give up something of value during the month of August. Why? To shine a light on the hundreds of little things our NF Heroes do every day that shows their strength and determination.

PHYSICAL CHALLENGE

While NF is typically associated with the development of tumours – which sometimes challenges their ability to behave as a healthy, active child should - children with NF can face additional hurdles including bone and spinal abnormalities which limit movement and cause debilitating pain. In some cases, the difficult decision to amputate the affected region is sometimes made.

But, that does not stop them from going out there and giving it a go, adapting and finding their passion and purpose again. What challenge could you take on that pushes you to physically?

  • Register for a fun run, triathlon or marathon happening in your area (see the full list of events happening in August HERE)
  • Commit to 30 days of AB Blaster or Spartan Training
  • Find a walking track in your area and pledge to add a kilo to your backpack for every $100 raised
  • If you are a guy, walk a mile in someone else's shoes (literally) by popping a pair of your partner's heels on and spend a day, week or month learning that "beauty is pain"
READ JESSE'S STORY HERE TO BE INSPIRED

EXTREME CHALLENGE OR FACE A FEAR

It is impossible to predict how mildly or severely someone with NF will be affected.  While the majority of people with NF will never suffer major medical complications, for others the condition can be severe, debilitating and even life threatening. In these extreme cases, we are reminded of what it takes for sufferers and their families to get up every morning and face the dawn, perhaps after years of chemotherapy and experimental treatments. 

Perhaps you have a fear of creepy crawlies, heights or even birds. There is no judgement about what you freaks you out, only passion to help you tackle that challenge head on to support your fundraising efforts.

  • Shave your head or beard
  • Throw yourself out of a plane or abseil off something really BIG!
  • Take on an ocean swim, hike a mountain or join a long-bike ride over rough terrain
  • Fear of sharks? Get in the water and face that bad boy head on!
READ MACY'S STORY TO BE INSPIRED

TURN YOUR WORKPLACE INTO A HERO'S HEADQUARTERS

NF is a lifelong condition, however challenges faced by adults can differ from those facing children. Adults face an increased risk of malignant brain tumours, high blood pressure, and stroke, while women are at an increased risk of breast cancer. Neurofibromas tend to increase during adolescence and adulthood, as well as in pregnancy, and can impact upon self-esteem. 

By participating in a corporate challenge, it is a great way to acknowledge our adult NF community and create some creative team building activities.

  • Toss your Boss out of a plane! Or if you have multiple "bosses" to choose from, why not set up a fundraising page where donations = nominations. The boss with the most donations at the end, must jump!
  • Why not get together with a group of colleagues or clients and do a 24-hour cycle or rowing challenge?
  • Turn your Christmas in July into a fundraising event and pie eating competition
  • Organise a Masterchef style cooking challenge with flavours from all around the world
READ HANNAH'S STORY TO GET INSPIRED

COMMUNITY CHALLENGE

Are you part of a  mother's group, men's shed or sporting club and have a love of organising others, as well as yourself to do something new and creative. Are you a teacher or student who has a great idea and need numbers to execute. 

Here is your chance to rally your networks in solidarity. For many people living with NF, feelings of anxiety, depression and social isolation are not uncommon, but having friends, family and an educated community of people around them, means these issues can be managed or even alleviated. 

  • Set a Guiness World Record for the longest knit
  • Organise a round robin at your local tennis court, but play one-handed or in a wheelchair
  • As a school, why not organise your very own Ninja Warrior Challenge where people sponsor you to participate?
  • Organise a clothes swap or wood carving competition
  • Host a video game tournament at a local venue and charge a registration fee to compete
READ EDWARD'S STORY TO BE INSPIRED

COMPLETE THE 2.5KM AWARENESS WALK ON NF HERO DAY

You do not have to be the strongest, fastest or most daring person in your street, school or workplace to join the NF Hero Challenge or attend the NF Hero Day. For some, walking a short distance may be the challenge they face or take on in lieu of a specific activity that may seem a little out of reach right now.

As part of the NF Hero Day, we will be hosting a 2.5km Awareness Walk in recognition of the 1 in every 2,500 people living with NF in Australia.

Dressed in yellow and shielded from the wind by our NF Hero capes, we will walk in solidarity and in support of those who face their appointments, treatments and surgeries with the heart of a warrior and the soul of a hero.

Each location will have a designated route.

REGISTER FOR THE NF HERO CHALLENGE AND EVENT HERE

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