MEET OUR NF HEROES
People with NF are borN Fighters. They face a life of uncertainty and anxiety, forced to battle tumours that can cause significant health issues including blindness, persistent pain, deafness, bone abnormalities, seizures, disfigurement and developmental delays. And whilst every person's experience is different, they all have one thing in common - THEY ARE ALL BRAVE.
You can read their stories here.
According to Macy’s family, “superheroes don’t always wear capes, but this one truly deserves one”.READ MACY'S STORY HERE
Jesse is a big sports fan and dreams of becoming Australia's next big athlete, but complications with his NF have forced him to first overcome some major challenges, including a bone abnormality and amputations of his leg.READ JESSE'S STORY HERE
Primary school was an incredibly lonely experience for Edward as as result of his NF. He didn’t have friends and was bullied mercilessly. "No one liked me. I couldn’t play sport at lunchtime, so I wasn’t welcome. I felt like I didn’t seem to fit in anywhere".READ EDWARD'S STORY HERE